About this prototype
This is a functional prototype built for the NHS Race & Health Observatory Digital Sickle Cell programme. Its purpose is to make the proposed service tangible for the Memorandum of Understanding and the tender — not to be the production system.
What it demonstrates
- Role-based access for clinicians, patients and nominated delegates.
- A structured, personalised care plan and an at-a-glance acute crisis view.
- Research consent capture, an episode Friends & Family Test and free-text feedback.
- An audit trail and a patient-facing log of who has accessed their plan — by design, to boost accountability and trust.
What production would add
NHS Care Identity (CIS2) sign-in for clinicians, assured information governance (DPIA), NHS-approved cloud hosting, real identity verification and messaging, antivirus-scanned uploads, and clinical safety assurance. These are deliberately left to the appointed delivery partner.
The source code is open. Accessibility statement.